Understanding Autism

Autism Life Histories

The goal of the Autism Life Histories project is to gain a better understanding of the road to an autism diagnosis from the perspective of parents of children with autism. Parents have different experiences and observations of their children's development and they have different personal resources with which they access care and services. Parents also differ in the type and extent of their support networks and social relations. And finally, parents make different decisions in their quest for obtaining the right diagnosis and care for their child. We are interested in learning how these factors affect the experiences of children with autism and their parents. We collected life stories from parents about their experiences in recognizing their child's autism, seeking professional help and navigating the system of services.


Thank you to everyone who participated in our survey. Updates on any findings will be posted here.

Please feel free to contact us via e-mail at understandingautism@columbia.edu with any questions that you may have.